Question: What is your only comfort in life and death?
Answer: That I am not my own, but belong with body and soul, both in life and death, to my faithful Saviour Jesus Christ.
He has fully paid for all my sins with his precious blood, and has set me free from all the power of the devil.
He also preserves me in such a way that without the will of my heavenly father not a hair can fall from my head; indeed all things must work together for my salvation.
Therefore, by his holy spirit he also assures me of eternal life and makes me heartily willing and ready from now on to live for him.
Heidelberg Catechism, Question 1
The LORD is in his holy temple; the Lord’s throne is in heaven; his eyes see, his eyelids test, the children of man. – Psalm 11:4
My heart aches for my friends. It is heavy in a way that feels like there is no hope. Yet, I am gently reminded that you are in your temple, you reign.
Help me not to listen to the words of the false one, who would have me and my friends flee like a bird to a cave.
You are our King. You love your people. You have not turned a deaf ear to the cries of your dear ones. We serve a risen Savior.
Love my friends well, your precious little ones, in their grief and, what appears to be, insurmountable pain. Comfort them as only you can.
After two weeks in Rochester, we are finally coming home on Friday, December 2.
Thankfully, all of the tests the Mayo Clinic doctors have run have ruled out a life-threatening illness . We are extremely thankful for that news! The best the doctors are able to determine at this moment is that the major issues Kathi had over the summer and fall seemed to originate from an allergic reaction that went systemic, then got worse due to rebound effects from an increasing dosage of steroids to treat the original problem. The steroid treatments then caused their own set of problems and nasty side-effects.
Because Kathi is still weaning from steroids, the doctors are not able to determine the foundational root issues. They want her to continue to wean off the steroids and see if the original problems return once the steroids are gone. If they do return, then we’ll do more testing at that time.
The plan right now is to get Kathi back to full health and recover from the past six months. Her health has generally improved the past two weeks, but she still has a long ways to go.
I can’t thank our friends enough for your prayers, caring, support, and encouragement these past months. We have been loved in some immense ways. We are not sure where these next months will take us, but we do know that the Lord loves us deeply and He has used His people to care for us. A special thank you to Kathi’s friends that have loved and cared for her these past few months, and to Anna Counts for loving and caring for our children while we have been away. Many of our friends have come alongside our kids while we’ve been gone and we are so thankful for you.
Rob and Kathi
Friday culminated a long week of tests, juggling to fit in work-in appointments, three straight days of fasting blood work, electromagnetic nerve tests, and more. Today we are enjoying a down day of just sitting around the hotel lobby, my catching up on some work, and enjoying football.
Next week will bring three MRI tests, an endocrinology consult, a hematology consult, a vasculitis consult, and hopefully some initial diagnosis consults on tuesday / Wednesday. So far, the doctors are keeping their initial thoughts close to their vest.
We are anticipating having to return sometime in January when Kathi is totally off her steroid load.
Today has been awesome. Kathi’s CardioVascual disease doctor has taken the reigns on Kathi’s health issues and has ordered a slew of more tests and consultations. It was the most in-sync appointment we’ve had yet. The doctor was able to see things happen during our visit that we’ve only been able to verbally explain before and she asked all the right questions to pull stuff out.
We do our Occupy Neurology movement on Wednesday at 7 am, and then do the same with Hematology, Vasculitis, and Endocrinology on Friday and into next week. As of right now, we probably will not be home until next weekend, Dec 3. We are so thankful for Anna Counts loving our kids and caring for them.
Thank you for praying.
We had a great day at Mayo today. Dermatology went extremely well, finally getting Kathi some help on all the allergic issues that have been at the foundation of this past summer. Lots of medicine changes to deal with what will likely be an on / off again set of challenges for the foreseeable future. Thankfully, the systemic mastocytosis has been completely ruled out. We have a CardioVasucular Disease appointment on Tuesday, then a very important Neurology appt on Wednesday. Pray for that Neurology appt – they have no openings until early December, but we’ve been told to camp out there anyway. So, Kathi and I are planning an Occupy Neurology movement beginning at 7 am on Wednesday for a non-violent demonstration