Tentative Travel Dates

Just spoke with St. Louis Children’s Hospital. Tentative travel dates are 2/17 – 2/24, with MEG testing on 2/ 18 or 2/19, and admit on 2/19.

Firming up on Monday….

Update On Maggie

Dear Friends:

For the past six weeks, Maggie has not been doing well.

Her seizures have begun occurring much more frequently, so much so, that Maggie’s neurologist in Colorado Springs ordered some tests four weeks ago.  The test results came back and showed that the mild abnormal electrical activity he saw three months earlier had increased significantly, and was trying to spread.  This abnormal electrical activity appears to be coming from around the original tumor bed, although it is not conclusive.  To help deal with the increase in seizure activity, Maggie’s medicine dosage is double what it was six weeks ago, and the seizures are still coming.

Maggie’s neurologist and neurosurgeon at St. Louis Children’s Hospital have been reviewing her latest series of tests, and they would like her to undergo some additional testing in St. Louis – a MEG test and extended video monitoring / EEG. These tests will isolate exactly where this increased level of seizure activity is coming from, and if there is anything they can do to help her.  To undergo this testing, Maggie will have to be off of her seizure medications.

As I write this, the hospital and insurance company are working out the dates, approvals, etc. I’m anticipating that we will be traveling to St. Louis within the next two weeks. Dax, Zoe, and Anna Kathryn will be staying here at friends houses, while Kathi and I travel with Maggie.

Please pray for Maggie. Except for a few minor bumps along the way, she has enjoyed a relatively calm year – enjoying school, taking TaeKwonDo, worshipping in church – basically, she’s been enjoying being a little girl for the first time in over four years. Her spirits are now worn down, fearful of what lies ahead. With the doubling of her medicines, she’s become very tired. 

Thank you for walking the past four and a half years with our family.  I honestly have no idea where this all might end up.  What I do know is that our God is the same God who was with Maggie and our family when all this started four and a half years ago. He’s the same God who was with us when we thought Maggie had died 2 ½ years ago. And He’s the same God who will comfort and care for Maggie, and the rest of our family, as we continue to walk this blurry line. He’s Good. He’s Comforting. He’s Caring. He’s Sovereign. He is to be feared. He is who we serve.

Gadget Lust?

Oh no. My good friend Matt Miller has hit me square in the face. He’s written a great article on gadget lust, contentment, self-control, and more. He also points to these good articles: Gadget Envy and Coping with Gadget Envy

Wow. I have some major reading to do. Gadget lust / envy is a real struggle for me, but one I’m constantly working to keep in check. As GottaBeMobile has grown and OEMs actually send us review units instead of my having to buy them, I’m not forking out as much cash / credit to write reviews on stuff. I do like to try brand new stuff out, though, and at times it takes a major hit on my finances.